There is poison in my mind

Ana, they say

Has taken over their thoughts

But I am not some quirky trend

I didn’t willingly choose this disease

It planted it’s roots in my mind

slowly poisoning my whole body

Black, sour, demonic

Anorexia for me

Is losing the trust of others

It is constantly letting people down

It is feeling harsh winter even amidst summer

Aching legs from not being allowed rest

It is the strong thudding of my heart inside my chest

The blackness that engulfs me when I stand

No, this isn’t a fad diet

Not is it something to admire

It is the beginning of the end

Unless one chooses to escape it

Relapses Happen

This year has been rough. Covid 19 appeared and turned our world upside down. For me, it lead to me dropping out of my university course and then my semi-permanent job finished. My city has been in and out of lockdown since March, to the point where we were in stage 4 lockdown for a few months and only now are we finding our way out of it. Australia has been incredibly lucky compared to many places though. It was our harsh lockdown that saved us.

I’m writing this to let you know that I’ve relapsed again. I had completely weight restored by March/April this year but that wasn’t to last. I think it was a combination of everything ,really, that caused it.

I was unfortunately also discharged from my eating disorder service and this had big implications. They said they didn’t believe they were helping me and therefore, stopped my appointments. I felt let down. Like they were giving up on me. I was already relapsing and it just made me feel more alone. I didn’t realise that my admission weight still counted and therefore, about a month ago, I spent about a 9 day stint on a medical ward. The problem is, it didn’t help me and I think it triggered me further. I was medically stable so it made me feel like I wasn’t ‘sick enough’. I’ve relapsed again since that and who knows how long I’ll be out this time.

In other news, I might be studying either a masters of nursing or recommencing psychology honours again next year. I’m not sure which yet. I need to make a decision but I’m fearful of not making the right one. (Whatever that may be).

My Story Was Shared

Hi guys, it’s been a minute! This year’s been tough and I’ll get into it eventually but right now I have some news.

The Butterfly foundation shared my story on their website! It’s meant to be mostly non identifiable but it was so rewarding to try and do something to help others. I encourage anyone in Australia/NZ with an eating disorder to submit their story and you can do it anonymously.

You can check mine out here; https://butterfly.org.au/story/a-life-after-is-a-life-worth-living/

Turning the Page in Recovery

I’ve had an eating disorder since I was about 13/14 years old and sometimes it seems like I’m bound to have one forever, but that’s not the case. The last few years have been full of recovery attempts and relapses but this time in recovery, it feels different. The main thing is; I want recovery. I want to get better. I have things (such as uni) to lose now and I’m sick of being sick. It’s hard to let go of my fragile and emaciated self but I am ready. I’ve been ill for long enough.

So what’s going to be different this time?

  • I’m sticking to my meal plan which involves eating three meals and three snacks a day
  • I’m committed to gaining a bit of weight and am okay with the number on the scales increasing
  • I know I need the energy to succeed in my studies after already having to defer them in the past. If I want to do well then I have to eat, there’s no way around it
  • I want to be social and spend more time with my friends. Being social often involves gatherings and food and I’ve missed out on too much because of my eating disorder
  • I’m taking control. I’m not doing this for other people but for myself and I think that’s the biggest factor right now. No one can be forced to recover, I’m living proof of that. It has to come from within and I think it finally is

Would I Cure My Mental Illness?

It’s not a secret but I suffer from a myriad of mental health issues; depression, anxiety, borderline personality disorder, and anorexia nervosa. Since a young teenager, they’ve tormented me and taken over my life. They’ve lost me friends, taken months or even years away from me and driven me to try and take my life. Considering all of this, brings the question, would I cure my mental illness? It’s not an easy decision, even though on the surface it may seem to be.

Mental illness has shaped who I am. It has taught me to be compassionate, empathetic and to not assume anything about what others have gone through. I’ve learned that everyone has their hardships even if they may not all be identical. I have become a better listener and a stronger person. I would not have thought that I could have gone through all that I have and be still standing. It has taught me that I can withstand more than I think and I have this drive to always keep trying. Mental illness has taught me not to give up, no matter how hard it gets. I believe it has made me a better person.

But what about the harmful bits? The constant torment, the anxiety, the overwhelming sadness, and suffering. Nobody would ask for that. Nobody deserves that. If I could remove the painful parts I would in a heartbeat. But the good and bad are tied together and that’s problematic.

All in all, if I had the option I don’t think I would change things. Mental illness has shaped who I am. I wouldn’t have chosen to have it but it’s made me who I am today and I like the person that I am now. Moreover, I don’t believe it’s a lifelong sentence. People recover from these things or at least learn to cope with it and go on to live long and healthy lives. I still have hope for myself.

What I Wish My Family Knew About Eating Disorder

It was never about weight. It was about wanting to fit in and having people like me. I wanted to be the good child and make you proud of me but this perfectionism then transferred to my weight. I thought if I could become smaller then maybe things would be better. I wanted to disappear.

Sometimes I want to talk about it. Sometimes I want to let everything out and have someone listen but this doesn’t mean I want you to fix everything. On the other hand, there are times when I don’t want to talk about it at all.

It’s not a choice. I didn’t wake up one day and think ‘I’m going to develop an eating disorder’. It’s something that took a while to come about and it started gradually. I first tried to eat more ‘healthily’ but then it got out of control and there was little I could do to stop it from happening.

It’s not your fault. There is nothing you did or said that caused me to get sick. Some things may have contributed to it but the etiology was a mix of personality, genetics and environmental factors.

I wish you were kinder to yourself because some of the things you do, I replicate with myself. When you say negative things about your body, I feel like I have to think similar things about mine. When you say you don’t need to eat something because you ate more earlier, it makes me feel bad about eating and I see food as excessive. When you talk about dieting, it normalises diet culture and I feel bad about not being on one and contemplate starting. It feels like you are saying our bodies need to be ‘fixed’, Please be aware that the words you say matter.

There is no such thing as ‘good’ or ‘bad’ food. All food is good in moderation. Chocolate is good for your mental health and certain junk foods are necessary to normalise eating again. Please stop categorising food because it is unhelpful.

 

Hitting the Reset Button

I’m writing this from the hospital and another eating disorder admission. Things went downhill after I graduated uni and I had a long admission late last year and unfortunately relapsed straight after being released. I was on the waiting list for 2 months and continued to decline so entered treatment at my lowest weight.

This is meant to be a short admission so I can begin my honours course (yes I got in!) in two weeks (3 week admission). As a result, I’m on quite a high meal plan and on nasogastric feeds to get my weight back up to a safer level. it’s been difficult and they’ve been strict with me; no leave, supervised bathrooms and wheelchair transfers.

The main point of this post is that I’ve realised I want to get better this time. There are things in life (work and study) that give me purpose and direction and I need to be well enough for. I don’t want my life to revolve around hospital and they’ve told me if this continuous then I’ll be classified as chronically ill and won’t receive the same level of support again. The prospect of being ill for the rest of my life terrifies me and it’s not what I want.

 

Third Times the Charm

I’ve been putting off making this post but I’d like to be transparent with you all.

Things have been going downhill with my eating for a while and I was eventually admitted to the eating disorder ward for the third time almost two weeks ago.

It’s slow progress and I’m finding it difficult but I am trying my hardest because I don’t want the rest of my life to be like this. I was given an ultimatum; either try my best to recover this time or be sent home and classified as ‘chronic’ and just have medical admissions when necessary. I don’t want to be chronically ill so the choice was obvious.

It’s hard because I do want to get better but I don’t feel ready yet. The ng tube was inserted yesterday and I’m going to fight to get out of here and get my life back.

Thinking of you all and I’ll update when I can ❤️

I Graduated

The title of this post is self-explanatory but I finally graduated university this month. It’s taken me three and a half years of study (+ a year off) but I got here in the end. If you’d have told me it would take this long when I started, I would have laughed. Yet, I’m okay with it.

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I’ve learnt so much about the world and myself and I can’t wait to go onto further study (fingers crossed I get in somewhere good). I survived a pretty gruelling degree at one of the top universities and my marks weren’t even bad. It was difficult but I did it and I finally feel like I’ve achieved something.

It didn’t always look like this would become reality but I’m proud to have pushed through and gotten here despite having to take time off for my health. Some dreams are worth fighting for and this was mine.

Life is not a race, and if you’re patient, you’ll get where you want to be.

You Are Not a ‘Before’ or an ‘After’

I used to think that before and after photos were inspiring, now I see them for what they are; misleading and harmful. A small snapshot into a nonlinear journey. They do not capture the missed opportunities, the wasted hours or the pain felt inside. They are not a representation of what you were like before getting ill and they do not depict your rock bottom.

I always knew that when looking at these photos, I longed to look like the person in the before. Yet, I couldn’t comprehend that other people might find my own photos triggering too. To me, my worst never felt sick enough and I never embodied the image of the ‘eating disorder patient’ that I had instilled in me by the media. However what I failed to realise, was that as an eating disorder sufferer, my perception of my body was warped and the media’s representation wasn’t accurate. These comparisons depicted a certain stereotype of the illness that I so desperately wanted to break away from. I preached that eating disorders were about more than weight, but still kept old photos as proof that I was sick. But my sickness had nothing to do with the size of my body and neither does yours.

Weight gain in recovery can be a wonderful and necessary thing, but the thing is not everyone in recovery from an eating disorder gains weight and not everyone starts off underweight. The people who do are in the minority. Images of bodies who are visibly unwell can reinforce the notion that eating disorder sufferers must look ill to be struggling and for their illness to be valid. They can invoke comparison in susceptible people. This leads to people thinking that because they don’t look emaciated, they aren’t deserving of help and therefore they don’t seek it or accept it. Instead, they get sicker.

Furthermore, weight restoration is not an indication of health or happiness. It does not mean that you are healed. Eating disordered thoughts and behaviours can exist at any weight, and appearances can be misleading. You don’t need to look your worst, to be at your lowest point.

Before and after photos are an oversimplification of a serious disorder. Eating disorders are life-threatening, mental illnesses. They are about more than merely food and shape and impact almost every aspect of life. They can stem from things such as other mental illness, trauma, perfectionism or an inability to cope. They are not just about weight.

For those wanting to share before and after photos, ask yourself why. Is it because of nostalgia for the body you once had and could one day return to? Are these photos proof of the severity of your illness? Does the fact that you are seeking validation mean that you are still somehow entrenched in your disorder? Who will benefit from the comparisons and would they have once been harmful to you? You do not need to prove that you were ill and no one deserves to feel like their suffering was any less because their photos were not as dramatic. No one is diminishing your achievements and it’s positive to want to show that recovery is possible, but challenge yourself to see if there are other ways you could celebrate how far you’ve come. You deserve to feel proud but be careful of what you share because you do not want your photos serving as ‘thinspiration’ for pro-eating disorder communities.

I wouldn’t ordinarily encourage people to censor their stories as I believe it’s important to share both the good and bad, but not when this harms others. We need to be conscious of how certain material can be detrimental to those who are vulnerable and know that we are responsible for sharing our journeys in a way that doesn’t pigeonhole sufferers. We also need to be sharing the stories of those that are often not seen or heard, the sufferers’ whos before and after bodies may not look drastically different or involve weight loss, those who are in the majority.

Instead of posting before and after photos of bodies, how about comparisons of emotions and life. How did you feel? What were your days like? What did your illness prevent you from doing? How has your world been enriched by recovery? What do you know now that you wish you had known then?

Finally, you are not a ‘before’ or an ‘after’. You are a lifelong journey, a steadfast during. A work in progress.

Stop comparing yourself to who you were and embrace who you are and who you want to become. If you keep looking back, you’ll prevent yourself from blooming.